International regulations concerning the use of predictive genetic testing

UNESCO-Declaration on the Human Genome and Human Genetic Data

UNESCO-Declaration on the Human Genome and Human Rights – Universal Declaration on the Human Genome and Human Rights of the General Conference of the UNESCO, adopted on 11 November 1997. Online Version

UNESCO-Declaration on Human Genetic Data - International Declaration on Human Genetic Data of the General Conference of the UNESCO, adopted on 16 October 2003. Online Version

Convention on Human Rights and Biomedicine (MRB) of the Council of Europa

Convention on Human Rights and Biomedicine – Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine of the Council of Europe, adopted on 4 April 1997. Online Version

Additional Protocol concerning Genetic Testing for Health Purposes of the Council of Europe

Additional Protocol concerning Genetic Testing for Health Purposes – Additional Protocol to the Convention on Human Rights and Biomedicine, concerning Genetic Testing for Health Purposes of the Council of Europe, adopted on 27 November 2008. Online Version

A compilation of guidelines, statements and reports concerning the use of predictive genetic testing from the 27 EU states, associated states as well as international organisations can be found in:

Borry, P. / Nys, H. / Goffin, T. / Dierickx, K. (2007): Genetic testing and counselling. European Guidance. Leuven. 

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