Ethics of Research Involving Minors

A European Perspective

Dirk Lanzerath, Marcella Rietschel

Research involv­ing minors is an area of con­tro­versy within med­ical ethics and med­ical law. Minors rep­re­sent a vul­ner­a­ble group, for whom par­tic­u­lar pro­tec­tive mea­sures are required and who should be excluded from research that does not offer the prospect of direct ben­e­fit. How­ever, the exclu­sion of minors from research into dis­or­ders of rel­e­vance to their age group pre­cludes the poten­tial for ben­e­fi­cial med­ical advances. Fur­ther­more, effec­tive pre­ven­tion strate­gies for com­mon med­ical con­di­tions with an ori­gin in child­hood and ado­les­cence, such as men­tal dis­or­ders, require the delin­eation of those who are at increased risk. This vol­ume con­sid­ers the eth­i­cal chal­lenges of research with minors for the researchers, but also for the involved research ethics com­mit­tees. In par­tic­u­lar, it reflects how minors can be more involved in the decision- making- processes and reports about the expe­ri­ences in con­duct­ing the Euro­pean mul­ti­cen­tric research project IMAGEMEND.

Further Information

ISBN: 978-3-643-90975-6

Publisher: LIT-Verlag

Publication Year: 2018

Pages: 128

Language: English

Ethics of Research
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