Obligation to provide treatment data
For considerations cited in favour of an obligation to provide treatment data see, e.g:
Gerlinger, K. (2022). Data mining – sociopolitical and legal challenges. In TAB-Fokus no. 40 (203). Office of Technology Assesment at the German Bundestag (TAB). https://doi.org/10.5445/IR/1000156941
For the full report see:
Gerlinger, K. (2022). Data-Mining – gesellschaftspolitische und rechtliche Herausforderungen. Endbericht zum TA-Projekt. In TAB-Arbeitsbericht (203). Büro für Technikfolgen-Abschätzung beim Deutschen Bundestag (TAB), 157ff. https://doi.org/10.5445/IR/1000156297
McLennan, S. (2022). Die ethische Aufsicht über die Datenwissenschaft im Gesundheitswesen. In G. Richter, W. Loh, A. Buyx, & S. Graf von Kielmansegg (Eds.), Datenreiche Medizin und das Problem der Einwilligung: Ethische, rechtliche und sozialwissenschaftliche Perspektiven (pp. 55-69). https://doi.org/10.1007/978-3-662-62987-1_4
Raj, M., De Vries, R., Nong, P., Kardia, S. L. R., Platt, J. E. (2020). Do people have an ethical obligation to share their health information? Comparing narratives of altruism and health information sharing in a nationally representative sample. PLoS ONE ,15(12). e0244767. https://doi.org/10.1371/journal.pone.0244767
De Vries, R.G., Tomlinson, T., Kim, H.M. et al. (2016). The moral concerns of biobank donors: the effect of non-welfare interests on willingness to donate. Life Sci Soc Policy ,12(3). https://doi.org/10.1186/s40504-016-0036-4
For an ethical consideration of the provision with the protection of privacy see, e.g:
Beauchamp, T. L., & Childress, J. F. (2019) Principles of Bioethics (8th edition). Oxford University Press, Chapter 8, Section Privacy, Chapter 8, Section The Distinction between Clinical Ethics and Research Ethics.